Its March 22nd and I’m going through one of my worst bouts with this disease and it’s so dis-heartening! I had been so lucky for so long to feel like once again I was living a normal life but this week has reminded me that I am no longer 100% healthy and if I don’t stick to my doctors orders I will feel the harsh symptoms of this disease. I hadn’t had a bad flare up in months and I decided I was going to stop taking my medicine. In my mind I felt like everything in my life was just better before I started taking medication and I wanted to be like that again! I wanted to train without it!

Everything was good, training was fantastic and I was feeling healthy. Almost six weeks without my medication and still nothing! My family, coaches, and fiance didn’t agree with me not taking my medicine but I was doing this for me! I wanted to be my old self again…… Well this had to be one of the toughest weeks of my life. Although I was still able to train most of the week, I had some of the most painful ulcers in my mouth and over 30 lesions on my skin. Now I wished I never stopped taking my medication. The doctors are always optimistic that the disease will go in remission the longer you stay away from a flare up. I was at a year and counting, now I’ll have to start all over again!

For anyone that has Behctes or any other disease always follow your doctors orders. Although sometimes we feel like we know what’s best for us, our doctors have seen a lot more than we have, and of course hindsight’s always 20/20. I can’t complain; I have seen so many others with this disease that are much worse off than me and I count my blessings everyday that this illness hasn’t stopped me from doing what I love to do, but if I can share anything with my fellow sufferers………ALWAYS TAKE YOUR MEDS!!! 

San

This entry was posted on Sunday, March 22nd, 2009 at 9:26 pm and is filed under Behcet's Corner. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.